Meet Epilepsy Canada Champion:
Meet Epilepsy Canada Champion, Chelsea Kern
Chelsea is hosting our 2nd Annual Eliminating Epilepsy Golf Tournament in British Columbia.
Chelsea’s partner Alex lives with epilepsy and that has inspired Chelsea to get involved.
“I hope with time I am able to make a significant impact with Epilepsy Canada, where we can help fund the research of a new medication or surgery and or find a root cause.”
Epilepsy Canada Influencer: Ron Lyons III
Meet Ron, our newest Epilepsy Canada Influencer!
“Faith in a cure and hope in Epilepsy Canada that we can make this aware to everyone and help find a cure.”
Epilepsy Canada Influencer: Jeff Edwards
Meet Jeff, our newest Epilepsy Canada Influencer!
“I want to be a spokes person for Epilepsy Canada because i have a voice. We need more vocal leaders. People who can share their experiences. We can all feel alone and like we're fighting this uphill battle.. But we don't have to feel like we're fighting alone. Purple powerful.”
Epilepsy Canada Influencer: Sarah Hepher
Meet Sarah, our newest Epilepsy Canada Influencer!
“Finding others who finally get what I have been going through my whole life, alone. Finding a cure to epilepsy would feel like a miracle, as I would love to live a life without medication as well as saying goodbye to the fear of a “next” seizure. Most importantly it would mean that so many other young people, people of all ages really, would not have to experience the same fear, uncertainty, and anger that I felt as a teenager. At this point in my life, I feel comfortable to share my story and speak with others who have been dealing with the same episodes and experiences as me, and to understand that you are not alone in how you feel and that your story can be shared.”
Epilepsy Canada Influencer: Bailey Murphy
Meet Bailey, our newest Epilepsy Canada Influencer!
Bailey is Ada’s mother. Ada, was diagnosed with focal epilepsy in March 2021 when she was only two months old.
“I hope that through partnership with amazing organizations such as Epilepsy Canada and their Epilepsy Influencer program, more people will come to understand that a diagnosis of epilepsy doesn’t need to be scary. With the right support, every child can grow up knowing that their disability doesn’t limit or define them, and that one day there might be a future where epilepsy is nothing more than a distant memory.”
Epilepsy Canada Influencer: Natalie Smith
Meet Natalie, our newest Epilepsy Canada Influencer!
Natalie started having seizures when she was 7. As a result, she struggles in school and with friendships growing up.
As a grown woman, wife, mother and health care worker her goal in life now is to educate people about epilepsy, because she feels society doesn’t have a lot of knowledge about it. She also knows what its like to feel alone being a person with epilepsy, and she wants to support others so they don’t have the same feelings.
Epilepsy Canada Influencer: Kimberly Tanious
Meet Kim, our newest Epilepsy Canada Influencer!
Kim was diagnosed with focal onset seizures at the age of 6. As a result, she had a difficult childhood. She was held back in school and would have about 20 seizures a day. She dealt with a lot of bullying, and subsequently struggled with her self esteem.
As Kim has gotten older, she has come to understand that her epilepsy is not her fault. She has built a great group of friends that accept her as she is. Her focus now is helping others with epilepsy.
Epilepsy Canada Influencer: Vanessa Wozniak
Meet Vanessa Wozniak, our first Epilepsy Canada Influencer.
In her role as Epilepsy Canada Influencer, Vanessa will help us with the important work of raising awareness for epilepsy and the need for epilepsy research.
As someone living with Epilepsy herself, Vanessa sees this role as crucial and she wants to give back to her community by advocating and spreading awareness.