INFANTILE SPASMS AWARENESS WEEK 2021

From December 1 – 7, 2021, a coalition of organizations (including Epilepsy Canada) recognizes the fifth annual Infantile Spasms Awareness Week (ISAW), a critical opportunity to educate the public about Infantile Spasms.

Infantile spasms is a rare and particularly severe epilepsy syndrome that typically begins within the first year of life. Infantile spasms is characterized by subtle seizures which can have large neurological effects, potentially leading to developmental delays and cognitive and physical deterioration.

Sadly, many primary care doctors and parents alike are not familiar with the signs and symptoms of infantile spasms. So, many children with infantile spasms do not receive treatment during the critical window within the weeks and months after the emergence of symptoms.

That’s why it’s critical for everyone to know the signs to STOP Infantile Spasms.

INFANTILE SPASMS ARE A MEDICAL EMERGENCY

Prompt diagnosis and treatment are critical, but this is challenging because infantile spasms can be mistaken for normal baby movements or other disorders that don’t demand urgency.

Watch this 2-minute video to learn what infantile spasms look like — it could save your child’s life.

Epilepsy Canada is proud to be a part of the Infantile Spasms Action Network. This coalition of organizations is committed to raising vital awareness about IS and it’s impacts on children.

Infantile Spasms Action Network