Cassie’s Fundraiser
Meet Cassie
I’m Cassie and I live with epilepsy, a condition that has shaped my life in ways I never anticipated. My journey with epilepsy began in Grade 12 when I had my first seizure. At the time, I didn’t receive a diagnosis. For over four years, I lived in limbo, undiagnosed, unmedicated, and uncertain, wondering if what I experienced was a fluke or a glimpse of something bigger.
It wasn’t until I experienced another seizure 4 years later that my search for answers began. That second seizure marked the beginning of a new chapter, one filled with fear, questions, and endless testing. Around this time, I began losing my hair. Each day, I watched my hair fall out until there was none left. It felt like losing a part of myself with every strand, leading to my diagnosis of alopecia universalis. Yet, my health challenges didn’t stop there.
Over time, my seizures became more frequent, often happening in the mornings when I was least prepared. This led to a seemingly never-ending cycle of sleep-deprived EEGs, MRIs, CT scans, blood tests, concussions, and doctor visits. We’re still searching for the right medication, a common struggle for many people with epilepsy. Every grand mal seizure that I have it feels like a setback, but it’s also a reminder of why this fight is so important.
Living with epilepsy is more than the seizures themselves, it’s the anxiety that comes with not knowing when the next one will strike or who might witness it. It’s the fear of losing control in front of strangers, the vulnerability of collapsing without warning and the isolation of feeling misunderstood. There is so much stigma around epilepsy, people see the seizure but rarely the story behind it.
This is why I’m partnering with Epilepsy Canada to fund research, raise awareness, and ultimately find a cure. Every dollar raised goes toward creating a future where individuals like me don’t have to live in constant fear or uncertainty about our next seizure. A future where we can reclaim our lives and move forward with hope.
Epilepsy is now a part of my life, but it doesn’t define me. I want to use my story to inspire others, to reduce stigma, and make sure people don’t feel alone.
Donate to Cassie’s Fundraiser
Your support means the world to me.
By donating, you’re not just funding research, you’re helping people like me find hope, empowerment, and a path forward. Thank you for being part of this journey. Together, we can create a brighter future for everyone living with epilepsy.
Thank you so so much!!